On the many different faces of loss

Source: https://blog.sleepingangel.com/?p=2932

Loss makes us feel incomplete

Loss makes us feel incomplete, for some time it can change us. How we feel about ourselves, and how we might present to others. There is a contraction to our perception. That is, how we might see and understand things. We instinctively put limits on our prospects. We don’t like the feeling of something “gone missing”. It’s like that uncomfortable feeling we get when we see a coffee table or a chair without one of its legs. Sometimes it can simply come down to symmetry and ballast.

Why do we feel the impact of loss so acutely

What is loss? “[t]he fact or process of losing something or someone”. It is etymologically related to the Old English los for ‘destruction’. This is what it can feel like at its worst, to have been broken apart. In the Old Norse los was used for the “breaking up the ranks of an army”. In divers ways we could feel ‘lessened’ or ‘inferior’. Made weaker by our loss. Consider a marriage which breaks down with one partner walking out on the other. This can cause for one of the partners to feel a loss of dignity and self-confidence. When a young person fails an examination, they might question their intelligence, again suffering a loss of self-belief. Our personalities are diminished, we believe or otherwise convince ourselves. Others might during a moment of cruelty make sure to convey to us, that we have lost some of our shine. We are made to feel humbled before our peers and friends. Nobody for instance, wants to hear these dreadful words which can stay with us a lifetime, “I have lost respect for you.” The hurt compounded immeasurably if it happens that it is undeserved. 

On the question of loss and its many faces

Every moment of our lives we are losing something. Our brain cells die in the thousands per second. As we age our hair falls out. We lose our teeth, our eyesight dims, and so too our vigour. We can feel ‘destruction’ going on about in our own body. And then to discern its evident dent on the bodies and minds of our older loved ones. We lose them too, and people comfort us, they “share in our loss”. Then the hours and days that we ourselves have left remaining on the earth, these, too, are lost. The question is then, how do we cope with loss and what are the different types of ‘loss’? Sometimes we are at a “loss for words”; or are made to “lose face”; we can “lose our peace”; we “lose our memory”; or “lose hope” and even “lose our mind”. People also “lose their self-belief” and can also “lose their faith”. We have all of us, lost things. Lost something. It can be natural or forcible. And our response to loss can reveal us to the world. It tests us. Loss can denude us. “Every one of us is losing something precious to us. Lost opportunities, lost possibilities, feelings we can never get back again. That’s part of what it means to be alive.” (Haruki Murakami)

What can we give to people who have suffered loss

How do we respond to others who are experiencing loss? The first thing is not to patronize. Nobody likes to feel they are being talked down to. The best way is to begin with: “I might not know exactly what you are feeling right now, but I, too, have experienced loss.” Almost always there is common ground to be found in another’s loss. It is best to remain silent for a while, and only to listen. Oftentimes we can help replace that which has been lost, a replacement toy or a new pet for a child, or a favourite book or a pair of reading glasses. But other times the loss is heartbreaking and enduring. The loss of a loved one. This is irreplaceable. This movement of charity towards the other will require the marvellous charisms of empathy and compassion. Each situation will require a different approach for there are many different types of losses, and each of these will be felt differently. If someone is grieving allow them to grieve, do not be tempted to tell them ‘how’ to grieve. Severe psychological or mental pain is personal and some things cannot be “fixed”. It is good that you are there. Empathy and compassion, to have ‘feeling’ for and to ‘co-suffer’ with the other, will open up our hearts to the anguish of the other’s loss. So we listen, we try to walk in the other’s shoes. We do not turn away. Sometimes we might even be as the ‘good shepherd’ to go after the ‘lost sheep’ (Lk. 15:3-7). “Loss” could become a mission of seeking out the wounded. 

Do not feel harried or be too quick to replace what is lost 

Sometimes we might panic and hurry to replace what is lost without too much thought or proper consideration for the outcomes. This rush to replace what has been lost, that is, to quickly fill the vacuum, can introduce other more hurting and lasting losses. It can lead from one mistake to another. Like an amateur painter who in trying to remove one smudge will inadvertently create a dozen more. If something is taken from us which, for example, we reckon to be rightly ours, we  could be tempted to retaliate without thinking through the consequences. A more discerning response could yield the better result. Bad choices can only lead to further experiences of loss and disappointment. The rush to find a new partner, for instance, which is not uncommon, can lead to further loss of self-esteem and heartache. I like very much how Ann Voskamp has put it, “[i]n our rushing, bulls in china shops, we break our own lives.” So wait, let us pull back for a season, re-organize ourselves to ‘count our losses’. Then we can during our quiet time make those new plans in moving forward. For those who belong to believing communities, it is prayer which will inspire the next movement.

How loss can oftentimes be good for us 

We are too often conditioned even from our earliest times to the reckoning that ‘loss’ is unavoidably bad for us. “Loss of playtime” let’s say, and later to be upgraded to “loss of privileges”. It then becomes a conditioning exercise, behave and things will be restored, with the result being, reflection time or alternatives can be overtly discouraged. This in itself could be the bigger loss. When I have experienced loss, whether that could be status or health, that is, loss on a personal level, I accept the early days will be hard. Then I tell myself, this has been for the good, because I have acquired new knowledge to do with resilience and a deeper faith in those things, I hold to be true. I am still alive and new words and definitions have been gifted to me. I can now grow further into my potential. It can soften my heart. It can break it. This makes it easier for revelation to enter deeper into its folds. Loss, too, could be good for us in this way, upon realizing that something is “missing” we might be as the woman who having ten silver coins loses one, to then “light a lamp, sweep the house and search carefully until she finds it” (Lk. 15:8-10). 

A telling Old Testament story

Joseph’s “long coat of many colours” (Gen. 37:3) brought him into conflict with his older brothers for it reinforced to them that he was their father’s, Jacob, favourite son. On account of their envy they conspired to sell him into slavery after having initially planned to kill him! The story is one of the most well-known from the Old Testament. Joseph owing to his prophetic gift ultimately rose to a high position in the land of Egypt, indeed to the highest most official position next to the Pharaoh. There came a time of reconciliation which shocked his brothers, but Joseph cognisant to the divine providence of God understood that ‘evil’ [and in this case a terrible loss of homeland, trust, and family] is not always what we might assume it to be: “But Joseph said to them, “Don’t be afraid. Am I in the place of God? You intended to harm me, but God intended it for good to accomplish what is now being done, the saving of many lives” (Gen. 50:18-21).

When the loss seems to us too unbearable

There are those losses which will seem too unbearable to us. Here, too, there is a way through this aching. We know this, for not few have been to such fiery places after even the most dreadful of losses, have been scorched, and returned to share their testimony. But we will have to ultimately work through this labyrinth and come to terms with it, for ourselves. This is the hardest truth, “[w]hat is to give light must endure burning” (Viktor Frankl). Bitterness and anger are normal human reactions. Yet we should be especially weary that these emotions do not keep too long in the heart which is our ‘spiritual organ’ and functions in an analogous way to the eye, filtering darkness and light. Change following loss can, and does hurt, and it will often hurt a lot, but it can make all the difference. It is temperature shock which hardens steel. It is intense heat which changes molecular structure. Franz Kafka who was fascinated with ‘transformation’ considered “patience” very high on the list of virtues. So endurance, once more, becomes the big key. It took Christ an eternity to reveal his blinding glory to his creation, “where his face shone like the sun” at his Transfiguration (Matt. 17:1f.). Allow for time and grace to make the necessary changes, similarly to hitherto unknown colours, created with the passing of the years on natural landscapes. “When all else is lost,” wrote the epigrammatic Christian N. Bovee, “the future still remains.” I know, too well, sometimes it can be like breaking your knuckles on steel. Some pain will not go away, but with time it will be lessened. But keep steadfast, day by day. Ultimately, that is the greatest secret. And we, all of us, know this to be true. 

Sometimes, too, we just need to lose things

Sometimes, too, we just need to lose things. ‘Stuff’ which is weighing us down, or causing us harm. Toxic relationships, for example. Addictions. Bad habits. Phobias. Things which are possible to overcome. These types of losses should never frighten us, but on the contrary, they should fill us with the most wonderful of all the expectations, lit., “an awaiting”. Like the very eager, but controlled trombones, in Shostakovich’s 9th Symphony. Or the terminal buds of lotus roots in pools which will bud when the temperature is just right. 

Then there are those periods in our life

Tempe, Arizona

In Shellharbour, NSW, one afternoon in 2018 waiting at school for my children. Courtesy: Michael Family archives.

Then there are those periods in our life when it would seem are reserved for the darkest thunderstorms. And the heavy rains keep coming. Most of us can look back on our lives, especially as we move deeper into middle age and pinpoint three or four of the toughest times. If we could survive those trials then surely we can survive the present ones and those yet to come. It is critical if we should feel ourselves becoming overwhelmed that we look back on those testing weeks, and months and sometimes even years, to see how we pulled through and what lessons can be drawn. Life is indeed a series of ‘ups and downs’ with the ups ever fleeting while the downs have a tendency to linger. This is why I will often refer to one of my favorite maxims gleaned from the desert dwellers that our existence is one of “joyful sorrow”.[1] I have also through my own ups and downs found great comfort in the words of Saint Paul:

“For I consider that the sufferings of this present time are not worth comparing to the glory that is to be revealed to us” (Rom. 8.18).

In recent months it has been one of those periods for me. They have been emotionally and physically difficult. I have had to navigate five deaths each one holding a specific significance in my life with three of these opening up an abyss of triggers affecting my mental well-being. Physically I was once more experiencing severe pain owing to a dental procedure to do with my jaw. We witnessed our eldest boy dealing bravely with having his boyhood dream taken away from him. Nepotism is such a terrible thing. A fortnight ago I also left my beloved UOW to go into possible retirement. A self-identity crisis [and I’ve had a few of these] are not good at any age. And in recent weeks I was preparing for my flight to the United States to catch up with the children and Katina. A trip I was greatly anticipating. Except I now have a fear of flying after almost dropping out of the sky and into the Caribbean on board a small Cessna a few years ago. All these things started to gradually overwhelm me. My blood pressure too rose dangerously which can give rise to other complications. I wept but these were not always the tears of prayer. If truth be told I was suffering in ways not dissimilar to earlier dark times, despite my being older and I would hope a little wiser.

The details behind these recent trials do not matter. They remain peripheral to this entry. For you can be certain that someone somewhere is battling with darkness more impenetrable than our own. Like my beloved Aunt Stella whose entire family was wiped out within the twinkling of an eye or Leo who everyday educated me mowed down riding his motorcycle by a drunkard who until he died one morning could only speak by flicking his eyelids. You try to reason through all of this? You either risk losing your faith or going mad. There are no shortcuts either. You cannot go round suffering. You confront it at the center and by sheer force you compel yourself forward. It can be brutal. It can be ugly. But it is the only way, and it is worth the struggle to get to the end of the race. It is the one true place where we discover our name. There is light on the other side and it is there waiting our entering. “I will fear no evil, for You are with me; Your rod and Your staff, they comfort me” (Ps. 23:4).

But I would like to share with you how this storm too was pushed through that I can now sit down and write these few paragraphs in the relative calm of our little apartment in Tempe, Arizona. I would like especially for the next few minutes to resonate with my younger readers. One of the deaths I spoke of above had in fact to do with the tragic loss of a beautiful young boy. And this is mourning beyond words. Together with the deaths of the bishop who had ordained me into the priesthood my first father confessor Archbishop Stylianos with whom after years of estrangement I had not reconciled and weeks later the sudden passing away of one of my dearest friends our national poet, Les Murray, brought mortality directly into my heart and it did wage war against me one more time. I was taunted amongst other doubts that my own life had been of little if any merit and that for the greater part my few talents had been wasted.

In dealing with the above experiences which came parceled in one hard fist and which not surprisingly released the ‘black dog’ together with an exacerbation of my OCD invariably following behind like a beast in pursuit of its prey, I went through a series of extreme emotions and temptations. And so it happened during these ‘visitations’ that a number of life’s sufferings and impulses arrived closed together: the raw impact of death, the specter of hopelessness, the unbearable thought of the loss of grace, lost opportunities at reconciliation, the weightiness of an overriding guilt, hurting through the unfair treatment meted out to my eldest son, the onset of a melancholia, frustration and anger, the crisis of identity, and strong physical pain. I had confronted such distresses in the same battlefield before but I was younger and more vigorous in spirit. The closest and the most terrifying yet, even more potentially devastating for me, the agonizing aftermath of my leaving the priesthood and the technical issues behind our multiple attempts of trying to save my doctorate which would at times quite literally delete line by line before our eyes. I do not wish for anyone to experience anything of this which was unremitting in its persistence and seemed to me an almost catastrophic situation that would not come to an end. During these times the soul does struggle in its efforts to pray. Do not be alarmed if this is happening to you. It is a natural phenomenon as the ideal situation for prayer is peace, and tribulation is not a peaceful condition. Christ Himself labored in prayer during His most difficult hours on earth: The Agony in the Garden of Gethsemane (Lk. 22:43f.). It is vital to persevere in our own ‘garden of the soul’.

So how can one deal with these multiple attacks? If there is a general formula I would like to know. There is no such thing and we each walk into these green fires on our own, and one way or another, we emerge different beings to what we were the hour before. There is no ‘general formula’ except for tears and the disquisition of whether to live or die. You can choose to live or die in a multitude of ways. This is because each one of us carries single life experiences into the ‘fire’: a present informed by a different past; a different set of values and beliefs even though we might belong to similar faith communities; we are of different ages and significantly of varying degree of resilience. In the extreme, and there are those amongst us who have been to this frightful place, suicidal ideation infiltrates our waking moments right through to our sleepless nights.[2] Yet, there is common ground, even if by virtue of our shared elements of flesh and blood. There is a ‘soft’ intersection of experiences where the crux of the human condition is at its most visible and sensible. It could be that place which Frankl has memorably called ‘man’s search for meaning’[3] or “the will to life” described by Schopenhauer as the fight for self-preservation.[4] For those who move and breathe within a belief-based community both these great pillars of hope and action can be summed up for example by Saint James’ connection of faith to perseverance through trials (Jas. 1:2f.) or to Buddhism’s teaching of Virya Paramita the perfection of perseverance through courage.[5]

Irrespective of our background or philosophical perspectives what these and other deeply felt insights borne from the observation of humans striving to survive are saying: there is meaning to your life, so will yourself to live.

It is possible, others many before us, have gone through these green fires and have come out alive the stronger and the more compassionate. They practice forgiveness of themselves and towards others. Suffering which never lies can do this to us. Adversity can be our most trusted friend. Blessed are they who mourn. It has been done before, and if we should persevere but another day, this too, it will pass.

Postscript Yesterday morning after I dropped off Eleni at summer school classes, I took my long walk down Southern Ave., Tempe. The heat would be unbearable if not for the fact it doesn’t ‘burn’ you like the summer scorchers back home in Australia. The forecast for today is 110 ℉! My ritual has been to take an initial short break at the Back East Bagels for a light morning breakfast. Then the much longer trek retracing my steps back past the school left into Rural Rd., to spend the next three hours at Tempe Public Library. I love spending time in libraries. Cicero well compared libraries to gardens. This evening George is leaving with his Arizona rugby teammates for Denver, Colorado, to contest the Regional Cup Tournament (RCT). Tomorrow morning Eleni and I will be flying out to join him to catch some of the round games.

And yet this impromptu postscript had another reason. On my way to the library yesterday turning left into Rural in the corner of the road my eyes caught sight of a little bird lying motionless in a ditch. It could have been a House Finch. I am not sure. It was dead still. It faced upwards its wings folded around its brown breast like a cloak. Eyes and mouth closed. It might have died for the lack of water. I don’t know. We can never know the whole truth. Not even about ourselves. I wept like a child. Is this normal? Do these things happen to you as well? I thought of the thousands of men and women and children who would on that day likewise die anonymously in the world whether of thirst or famine, homeless somewhere on a city street, or by themselves in a hospital bed. Anonymously and alone like this little bird which, too, had a history and stories to tell.

[1] https://pittsburghoratory.blogspot.com/2012/05/joyful-sorrow-compunction-and-gift-of.html

[2] https://www.youtube.com/watch?v=7CIq4mtiamY

[3] https://www.psychologytoday.com/us/blog/hide-and-seek/201205/mans-search-meaning

[4] https://en.wikipedia.org/wiki/Will_to_live

[5] https://www.learnreligions.com/virya-paramita-perfection-of-energy-449709

These are your terrifying moments of cleansing

Shellharbour, NSW

What to do when you want to pray but cannot? When you would wish for your heart to become ‘dumb’ and turn to stone if only for a short hour that the pain could go away. This terrible nauseous pain which goes by many names and which in reality answers to none. But, no, your heart must never turn to stone, not even for an hour, for that would be an hour where you would stop loving, where you would lose all capacity to forgive or ask to be forgiven. No, you must never ask for your heart to turn to stone, not even for an hour. Not even for the time it takes to suck in your breath. And so, suffer all of the calumny, the blood-letting rejection, and in the night close your eyes to the horror vacui of your rooms. As tempting it might be to stop the pain, to dry up the flow of tears, to wipe away the bad memories which become increasingly beastly by the minute, do not ever wish for your heart to turn to stone. What to do when you want to pray but cannot? When you would wish for your heart to become ‘dumb’ and turn to stone if only for a short hour that the pain could go away.

“Self-portrait” in Paphos, Cyprus, 2016. MG Michael Family Archives.

But this pain like an old guilt does not easily go away. Both have changed you and for a season you will only exist and move about in the shadows. That's why think on those whom you might have comforted on their deathbeds when you whispered into ears straining for light [for their eyes had now shut]: “Let go, it is good, now is the time to leave.” Remember the unmerited grace you have received which has covered the multitude of your iniquities. Be grateful there is water in your home and you will not thirst tonight when your throat burns. Get up, wash your face, and write a loving message to your enemy. Like an Armenian flute suspended over the Syrian Desert. In a little while feel the heavy load upon your heart start to lift, even for a moment. And for now that is enough. Begin again. Like the free-flow juice pressed and crushed from the grape. These are your terrifying moments of cleansing, one way or another, you have earned them. Do not waste them.

The shadows, too, for a while, do not be afraid of them. They would not exist if the light was not after you. It is after you. You cannot outrun it. These prayers have nothing to do with the rubrics as does this pain which has little to do with the nerve fibers. There are the spaces of the entering into your becoming, ​the unveiling of your true self. From here, out of these all-consuming green fires, you will step out to greet the world.

Life changing talks with a song and a poem to boot

Used discerningly YouTube, the video-sharing website founded in 2005, is a truly incredible reservoir of stockpiled knowledge no more than a click away. The vital thing is discerningly for like many things in the online world this too can become quickly addictive. It is not difficult to stray in this electronically fuelled atmosphere, particularly with such a visual and captivating medium as film. It can become overwhelmingly seductive. Otherwise it is indeed a marvellous place to visit. And so what we hear about “the good and bad sides of YouTube” is without doubt true.

Elsewhere I have shared some favourite pieces of music. Here I would like to share a sample of life changing talks I will turn to. I will visit these downloads when I need an additional reminder that tomorrow is another day where new and exceptional things can happen. That even the next hour is full of great possibilities and salvation from despair. I am sure you will find some of these very special YouTube talks helpful if not for yourselves, then at least for someone near and dear to you. These profound presentations touch on various dimensions of life and the shared wisdom of the presenters can benefit us even if this might only mean becoming a little more compassionate and understanding ourselves. The presentations below have at least some very significant things in common: (i) The speakers have themselves experienced the deepest aspects of the journey which they describe and [like all “wounded healers”] have experienced the ‘wound’ themselves, (ii) they are not asking for your money or selling you a ‘secret’, (iii) self-realization and affirmative behaviour begin with a brutal self-assessment of why we find ourselves engaging in destructive behaviour; (iv) once the problem which is hurting us is realized there is set into action a hard-nosed plan and a fierce determination to see the resolution for change through.

These points are summarised best perhaps by the physician and addiction expert, the Hungarian-born Canadian Gabor Maté: “Something else is possible and you are worth that possibility.” Muniba Mazari, the inspirational Pakistani artist and motivational speaker, tells us how that possibility might be entered into: “Behind every inspirational picture there is an untold story of constant pain, persistent effort, and determination.” We do not have to agree with everything we hear in these talks, and in some places we might noticeably diverge, but there is too much truth and loads of sweet honey here to at least not stop for a while and to consider both the implications and the possibilities.[1]

[1] In all these testimonies we will find in the words of Jerry Long, a logotherapist in the tradition of Frankl and someone who had his own great challenges to overcome, “the defiant power of the human spirit” (Man’s Search For Meaning, Viktor E. Frankl, Simon & Schuster: New York, 1984, p. 171).

And a song and a poem, Leonard Cohen, Constantine P. Cavafy

Pastoral experience and the practise of compassion

“Compassion is born when we discover in the center of our own existence not only that God is God and man is man, but also that our neighbor is really our fellow man.” (Henri Nouwen)

Many times I would be humbled if not completely heartbroken by my pastoral experience and it was this practical expression of the priesthood which often gave meaning and dimension to my calling. It was an education into the human condition not taught in institutions of higher learning and only occasionally captured in literature dealing with loss and suffering. It is difficult, if not impossible to be taught compassion. It is like a naturally good singing voice, you either have it or you do not. To be confronted head-on with absolute loss, some of this sudden and violent, some of it slow and agonizing, was a fast and hard lesson into the reality of unfathomable pain and the dreadfulness of death.

The one thing I could not accept even from the start of my little ministry was the ‘pious’ response to death, and I did try hard to avoid it. I am sure, however, that even with the best intentions I was not always successful. It was above all painful to listen to indefensible nonsense when it involved the death of a child when the words came from the mouth of a priest who should have known better, “A. is now with God, the Lord needed another angel.”  This is not the loving Creator of things both “seen and unseen” but little more than a cosmic psychopath. C.S. Lewis reflected with brutal honesty on the heavy grief of losing his beloved wife:

“It is hard to have patience with people who say ‘There is no death’ or ‘Death doesn’t matter.’ There is death. And whatever is matters. And whatever happens has consequences, and it and they are irrevocable and irreversible. You might as well say that birth doesn’t matter. I look up at the night sky. Is anything more certain than that in all those vast times and spaces, if I were allowed to search them, I should nowhere find her face, her voice, her touch? She died. She is dead. Is the word so difficult to learn?”[1]

Mother Maria of Paris writing agonizingly and yet without the abandonment of hope, after the death of her beloved child:

“Into the black, yawning grave fly all hopes, plans, habits, calculations and, above all, meaning: the meaning of life… Meaning has lost its meaning, and another incomprehensible Meaning has caused wings to grow at one’s back… And I think that anyone who has had this experience of eternity, if only once; who has understood the way he is going, if only once; who has seen the One who goes before him, if only once- such a person will find it hard to turn aside from this path: to him all comfort will seem ephemeral, all treasure valueless, all companions unnecessary, if amongst them he fails to see the One Companion, carrying his Cross.”[2]

It goes without saying, I do not hold the answer, but I have made some reasonable peace with the hard reality of loss both in the context of my own faith and in the discernible movement of transfiguring love.[3] Like many of us, I too have experienced profound loss, and like most of us, it has for a season come close to paralysing me. I have yet to completely come to grips with the passing away of one side of our entire family or my darling Katina’s four miscarriages. I spoke of ‘transfiguring’ love, for this has been the implication and consequence of Christ’s own death and how from that darkest day in our human history, came the greatest solace to the human race, that death is not the end.[4] But this belief founded in a religious faith does not exclude those who are not religious, for the underlying lesson, the ‘meaningfulness’ of the resurrection [even if we should only accept it as a metaphor] is that death does not mean inertia. It is a movement and a response [both for the living and dead] from one condition into an other. There is hope for a better tomorrow, and should we endure through the dark night, there will come a time when at least something of our suffering, will make some sense. As impossible as it is to accept when pain has no words, a time of solace will come. And this ‘dealing’ will arrive for each one of us differently, at a different time and in a different way. For suffering is almost always an intensely personal experience. Even if in the meantime our loss is to be redeemed no more than with our dignity in the face of an overwhelming blackness, and our refusal to be fully broken.

My brave young friend Leo

I have been blessed to have encountered genuinely courageous souls, amazed at the vast and often immeasurable endurance of the human spirit. Hospitals and grave-yards are the unadulterated universities of our world. It is in these places of unmistakeable reality we can measure ourselves and learn to heal and to forgive. I met Leo when I was still in the early stages of my ministry, starry-eyed and believing that I could make a difference. I would often make unannounced visits at hospitals and do not remember ever being turned away. In a pocket to my cassock I kept a carefully folded piece of white paper. On it I would register the names of all those I would visit and next to their name put down the colour of their eyes. There you are, I share with you one of my great secrets. We should look into each other’s eyes more often. It is all there, the unabridged history of a life.

Leo K., a young man in his early twenties had been involved in a horrific accident with the worst of all possible results: quadriplegia with locked-in syndrome [LIS]. He was fully conscious but trapped inside his body. Neither able to move nor to speak. A drunkard had disregarded a stop sign and crashed head-on into the beautiful boy who was riding his motor-cycle. The next time my brave young friend was to wake up it would be without movement in his limbs and without his voice. Until his death a few months later, he would only be able to communicate with his eyes. I would pray some silent prayers. Other times I would want to hold him in my arms. Did he like to dance? I am sad that was something I never had the chance to ask.

Leo and I would communicate using a magnetic board with red letters. I would point to a letter and he would blink at the right place. Then we would move on to the next one, soon we managed to work out short cuts and this made things simpler. So we were able to drift into other places and explore additional modes of communication. Not once did he complain or express a desire to die. Often he would be smiling. His heart was at peace. Of course, needless to say nothing of this was easy. It took titanic strength. Years later when horrifying thoughts of suicide would unrelentingly torment me, I would many times recollect him and hold back until the next day. I asked Leo if it was okay for me to bring a recording of the Gospel of John. He replied, “Y.” I asked him if he still believed. It was the same response, “Y”. There were other things we spoke about as well, including rugby league. He told me he was a fan of the Sydney Roosters. Leo, who had the most penetrating green eyes, died from pneumonia a few days before he was due to fly out to Moscow for some cutting-edge treatment.

One afternoon I visited Leo with a new seminarian. He said to me, “[w]e have nothing to complain about, look at Leo.” This especially upset me. We should not find comfort in the suffering of another nor look upon suffering with pity nor patronize the wounded. ‘Feeling sorry’ helps no one and can diminish our companion’s understanding of hopefulness. On some bowed stringed instruments we find metal strings, they vibrate in sympathy with the stopped strings. These are not touched with the fingers or the bow. They are called sympathetic strings. Compassion is something like that, to feel sorrow for the sufferings or misfortunes of another. Compassion [from the L. compati ‘suffer with’] has much in common with that glorious word: sympathy. What is sympathy? It is derived from the Greek sympάtheίa which literally means “feeling with another.” It is good to be a ‘sympathetic string’. Yet it is not always easy and it can only happen in small increments of grace like the baby steps we take to enter into the mystery of the parable of the Good Samaritan (Lk 10:25-37).

The Diving Bell and the Butterfly

At the conclusion of the last class when I was teaching regularly at the university, I would suggest a reading list to my students which was outside our information and communication technology (ICT) bibliography. This list included authors such as Primo Levi, Aleksandr Solzhenitsyn, Viktor Frankl, and Jean-Dominique Bauby. JDB the editor of the French fashion magazine ELLE was made famous by his incredible book (which was published two days before he died), The Diving Bell and the Butterfly.[5] In 1995 at the age of 43 he suffered the brain stem stroke (the brain stem passes the brain’s motor commands to the body) which causes locked-in syndrome. Bauby with the help of some good people, particularly Claude Mendibil, wrote and edited his memoir one letter at a time with the only part of his body that he could still control… his left eyelid. He did this similarly to the way I would communicate with Leo, by using a board with letters. This type of system is often called partner assisted scanning (PAS). And like Leo, he too, would die of pneumonia.

[1] The Quotable Lewis, Wayne Martindale and Jerry Root (editors), (Tyndale House Publishers, Illinois, 1990), 149f.

[2] https://incommunion.org/2004/10/18/saint-of-the-open-door/

[3] ‘The paradox of suffering and evil,’ says Nicholas Berdyaev [whom Bishop Kallistos cites in The Orthodox Way], ‘is resolved in the experience of compassion and love.’ These oft quoted words point back to the Cross but also to Saint Paul who understands suffering as a participation in the mystery of Christ (Phil. 3:8-11).

[4] The Paschal homily of Saint John Chrysostom (c.349-407) read on the Sunday of the Resurrection continues to inspire and to comfort believers across Christendom: http://www.orthodoxchristian.info/pages/sermon.htm

[5] https://www.amazon.com/Diving-Bell-Butterfly-Memoir